Thursday, February 7, 2013

You Don't Know...

                 





                         I am the Mom next to, behind or in front of you in the church pew.  I can hear the aggravation in your breathing.  I can feel your stares.  I can see your side way glances and your eye rolls. I have listened to your whispers about my child not participating properly in the mass.  I can see the look of horror in your eyes when my child does not receive communion or dances/runs/skips back to the pew on the rare occasion that my child can tolerate communion.  Then I see the gasps when my child returns chomping and/or gagging because it wasn't exactly what my child could tolerate that day.  Believe me, I know that my child's books/crayons/movements/talking are not appropriate for church (especially for her age)!  I am trying to teach my child to be a part of this giving and loving community.  Yes, my child leaves to go to the bathroom and 10 minutes later to get a drink of water.  Why does this bother you? No, my child can't sit still.  Yes, my child talks.  Yes, my child is disruptive.  Yes, my child crawls under the pews.  Yes, my child bounces her legs, shaking the whole pew.  Yes, my child chomps on gum.  I go through mass witnessing your actions on top of my child's actions and I get irritated, frustrated, emotional. I reprimand the best I can without making a bigger scene and I get more looks and frustrated whispers.  I suck back tears through most of the mass.  I leave in a much worse place than I was when I walked into this Church of God. The one place where we should be accepted! You are suppose to be my Christian Brothers & Sisters.  My child does not do these things to disrespect you or God.  My child does these things because, well, because it CANNOT be controlled.  My child is special needs.  My child has more than one diagnosis: PDD-NOS (Pervasive Developmental Disorder-Not Otherwise Specified) an autism diagnosis, GAD (General Anxiety Disorder), ADHD (Attention Deficit Hyperactivity Disorder), SPD (Sensory Processing Disorder), and Impulse Control Disorder.  There are more, but we quit searching for another diagnosis to focus more on helping our child! My child looks "normal".   To most, my child appears spoiled, disrespectful and in need of discipline.
                                                                                                                                                              The reality is.... 
          •  my child's maturity is lacking by at least 2 years, which makes socialization difficult and usually not appropriate. 
          • my child's sensory system is so unregulated that sitting still is impossible, chewing on gum a must, climbing around needed, leaving for the bathroom a much needed "break".
          • my child doesn't understand that what she does effects everyone else.
          • my child has oral sensory sensitivities which make receiving Communion a huge challenge, not to mention many foods!
          • my child is in a constant "fight" with the body and the brain!
          • my child NEEDS your patience and understanding!
                Please, I beg of you, the next time you see a child "acting out" keep in mind what could possibly be going on.  Keep your whispers and eye rolls to yourself.  Dig deep and find some understanding. Don't judge the child or the parent.  Offer help if you can. Most importantly say a prayer for that child, the siblings, and the parents, every day is a struggle! 

Friday, December 28, 2012

2012 Revelations

2012 brought me a lot of,  shall we say, 'revelations'! Things I have always known, but have really hit the mind (and heart) with power this year....


             Forgiving, especially those who have never really asked for forgiveness, is heart wrenching difficult.

              There are those that will never really 'get' your special needs child and looking beyond those people is proving more and more difficult as the years pass.

              Anxiety and fear can and will eventually ruin you and the relationships of everyone you hold dear.

               I yell way too much! 

              My wonderful children pick up my most horrible habits and never seem to show my most positive attributes!

              It is harder for some, than others, to let you have your own opinion.  They find it hard to look past it without arguing their point or to try to change your mind.  I am not easily swayed one way or the other. Others surprised me in being able to do this and it makes me appreciate their friendship even more! We are all entitled to our own views!

              Friends are not forever ~ LOVE is!

              Some of my best friends are friends I have never met, haven't seen in 20 plus years, or have only met briefly.  We share our lives through pictures and posts and they tend to be the most caring and supportive people I have the honor of knowing! 

               I spend way too much time on the phone with my real life friends (you know who you are)! The select few who really know me and really get me!

              My parents are getting old and I don't like it!

               I enjoy my immediate & extended family (Aunts, Uncles, Cousins) immensely, but do not get to spend nearly enough time with them.
  
              Being judgmental is human nature.  Not being judgmental proves difficult.

             The strongest, most educated, most beautiful, etc. is not always the winner!

              My morals will always beat out the popular idea, even if they are not always the most commonsensical to others.

              I am more sensitive than I am strong!

              It is very important to laugh at yourself!
   
              Everyone has a breaking point!

              Feeling broken does not make you any less of a human being!

              There are some peoples shoes I NEVER want to walk in and some I wish I could just to give them a break!

              Listening is better than any advice you could ever give.

              Laughing really is the best medicine, but a good cry is cleansing for the soul!

              Everything really does happen for a reason.  

              People cross paths! Some stay, some go, but all have an effect on your life!

              Tragedy brings people together.

               Angels exist.

              My Husband really does complete me!

              I love my children with all my heart and soul, but I am not a very good role model.  I am thankful they have people in their lives that are.

              Things we want don't always come to us and those we avoid seem to run smack into us!

              There will NEVER be enough time, so don't waste what you have.

               Always try!

               Be yourself, not who others see you as.

               God carries me more than I carry myself!

Although these are not all of them, they are the ones that really made an impact on my life this year.  Add some of yours in the comments below!

May you have a Happy, Peaceful & Successful 2013!  
               


  

Thursday, November 22, 2012

Remember Thanksgiving?



Year after year Christmas gets its start earlier and earlier. This year it began before Halloween. Maybe it’s because of the recession, but really do we need to see Christmas before Halloween? It’s the retailer’s way of saying “You had better start your shopping before time runs out!” I have come to the conclusion that two very important factors are being forgotten: 1) Thanksgiving is a month before Christmas and 2) Christmas is the Christian celebration of the Birth of Jesus Christ, not a celebration of retail shopping! Okay, even if you aren’t a Christian and don’t celebrate Christmas as Jesus’ Birthday, it still has more meaning to it than buying ugly sweaters and unwanted doodads (we can save this subject for another time)! Too often people are forgetting these factors. Can we please put aside the Christmas decorations and the shopping and remember Thanksgiving this year??? We have a lot to be Thankful for in this World. I for one am thankful that I had this opportunity to share my thoughts with everyone who reads this.

It was a week before Thanksgiving and preparations had already started!
Decorations crowded the stores and the season shown in everyone’s smiles.
The air was brisk, as children prayed for snow.
Traffic was backed up every street corner I turned.
The Turkey’s thawing in the refrigerator,
The china and crystal have been cleaned.
The House is in tip, top shape, for the guests we will be greeting.
Not one cobweb can be seen, fluttering from the ceiling.
Grandma’s eyes are gleaming, while Grandpa is fast asleep in front of the TV.
Finally with one flip of the switch, THE CHRISTMAS TREE LIGHTS UP????
WHAT?
CHRISTMAS TREE?
What happened to Thanksgiving?
You know, turkey and stuffing, family and friends, a little football on the television!
Thanking our creator and each other, for what we truly love and have!
Thanking…Thanksgiving!!
They go hand in hand!
Have we forgotten this holiday that’s so important to our lives?
Can we not set one short season aside to say THANK YOU?
Thank you that we are alive?
Or have the presents, the trees, the lights and the hype of Christmas become so much that we have forgotten, not only Thanksgiving, but that it’s not presents but the Birth of Jesus Christ, that Christmas is about?
Thanksgiving has been forgotten much earlier this year…
The trees are up,
Christmas Carols are being blared.
Santa Clause has already come to town, weeks ago apparently!
So since people have forgotten to prepare for Thanksgiving this year
Here are the thanks that are in my heart….
Thank you for my life, health, family and friends!
The food that will be at my table when others will have none!
Thank you for my husband’s job and our home!
Thank you for my community that will share with those that have no one!
Thank you for my country, great land of liberty, and those that are protecting
us far from home!
Thank you for not letting me forget that Thanksgiving is a meaningful time of
our autumn season!
HAPPY THANKSGIVING and thank you for being you, my friends and family!


Copyright © November 12, 2009
Sandie Becker

Sunday, June 17, 2012

My Parents

This was my Commemorative Speech from my college public speaking class. Some of it may be a "little" exaggerated, but for the most part it really hits on what life in the Murdoch household was like! 

Mom & Dad, every day should be Mother's & Father's day for the hell you have lived through having us kids! Love you both!


My Parents

My Parents!  Mom and Dad!  Who are they?  I am really not sure.  I have known them for 20 years and I still have not figured them out.  I watched them raise five kids, including myself, and am still watching them raise another.  I am really surprised they are still alive.  After all, we have put them through hell more than a dozen times and have given them plenty of opportunities to drop dead from a heart attack.  My parents have probably seen more stationary from schools than the schools knew they had.  They received notices for detentions, suspensions, progress reports, and letters from teachers.  So, they scolded us, cursed us, grounded us, starved us, took the car away from us and have even forbidden us to breathe.  Nothing worked.  Yet, they never gave us away.  They watched us terrorize their home, put holes in the walls; more holes than anyone could ever count, break each others bones, cut each others hair and on a good day they would sit back and watch the five of us in a pile screaming and punching, trying to hurt whoever got in the way.  Sometimes even drawing blood.  Yet, Mom and Dad, stood by us through everything.  They gave us money when we were broke and still do.  They were there through all our troubles,  boyfriends, girlfriends, our first encounter with alcohol, smoking, and drugs.  Through broken friendships, problems at school and even death.  They always had a word of advice, which of course, we never listened to.  Oh, by the way, no matter what my parents say they are not always right!  Sometimes I really wonder if they are even human at all!

Our parents brought us into this world and we all knew they could have taken us out of it!  I am the only girl out of five kids, and the only normal one!  I was not the worst of us kids, but I did my share of not so smart things.  I started the bathroom garbage on fire and I crashed the snowmobile into the neighbors house.  Fortunately, we can now sit back and laugh at the holes in the walls, the fire, the crash, and the time Rich threw Dave into the bathtub and busted the tile surround down. Yes, all of us lived through this!

Mom and Dad even took us on vacations, believe it or not!  Long drives in the station wagon with five kids fighting in the back.  We went on camping trips to a place called nowhere!  You know, "Where we going Dad?"  "Nowhere!  Now leave me alone!"  You never know what could happen on a trip like this, and if it could happen, it did.  Bee stings, poison ivy, scraped knee, raccoons stealing food out of the coolers, sunburns, stepping on a rock, the gutsy little fish nibbling on you while you were swimming, the boat overturning and so much more!  The soft-shell turtle that Dad thought was a log and scaring each other with fish heads!  Hard to believe they put up with us through all of this and still took us camping again!  Of course, we never thought us kids would come back from these trips alive!

We were always crying because of this or that; my new box of crayolas that melted all over the dash of the car, a broke toy, or because of a bump on the head.  There was always those stormy nights when we fit seven people in my parents bed and of course those agonizing screams from a bad dream or a monster under the bed!  Tears were shed for everything, big or little, as long as it made Mom and Dad miserable.  Talk about making them miserable, I must not forget the time our gerbil got out of the cage and made its way to our parents bed!  I won't get into details, but you can imagine what happened after that.  It all seams unreal that they never took us out back into the woods and shot every one of us!

They took care of us when we were sick, with only one complaint:  "Quit throwing up, I'm running out of towels."  We were always too scared to get up and run to the bathroom and even if we did, we never made it.  They were even there through the five of us having chicken pox!

You know those little phases that everyone goes through when they are growing up?  Well, my parents put up with those too.  One night after a long confidential meeting in their bedroom, Rich and Dave announced to Mom and Dad they were running away.  Mom bundled them up because it was the dead of winter, and sent them on their way.  Needless to say, it was dark and they came back in a hurry asking for a ride.  After minutes of begging and getting no where, they decided to stay until morning.  Mom said it was now or never.  So, life in the Murdoch house went on as always!

My parents have seen it all!  They are still here, hopefully to see a whole lot more.  I guess they'll always be raising us kids in their own little way.  Teaching us right from wrong and all of life's little mysteries.  One day they'll be sitting back laughing as we try to do the same with our kids.  They always said "Wait until you have kids, you'll see!"  Of course, we all swore our kids would be angels, unlike the terrors we were, and if they weren't then they would be spending an awful lot of time at Grandma & Grandpa's house!  Some day we will all learn exactly what they meant!

So the question remains;  Who are my parents?  I still haven't figured it out!  Superhuman?  Maybe not, but I do know that they are terrific parents that really love us a lot!


I should note, that after I got married they up and left for Arizona, something we were all pretty shocked by!  Our kids ARE all terrors and they really don't get to spend nearly enough time with Grammie & Papa!  :)  I'm sure they are having a good laugh at our expense!


Wednesday, May 23, 2012

Another Milestone....



            Tomorrow will mark the end of Lilly's fifth year at Eisenhower Academy.  They have a ceremony called Fifth Grade Farewell before they move on to Junior High.  Eisenhower has been an incredible experience for Lilly and has really helped her grow academically and as a person.  Lilly completed first through fifth grade on high honors, every quarter, all five years.  I am, we are, so incredibly proud of her!  As we celebrate this amazing milestone though, I am also completely broken!  Crying for Maggie!  That she will NEVER have this opportunity!  That I was not able to heal her to a point that she could accomplish this or that she could have the chance to even try!  So often, I feel like such a complete failure in everything I have tried for her!  I had to accept a long time ago, that even though her IQ is through the roof, that she probably was not going to be given the opportunities that Annabelle & Lilly have had.  It doesn't mean I don't fight every day to get her there!  It most definitely does not mean that it doesn't break my heart! Over and over, again!  As her Mother, it devastates me!  I watch those days of complete and total "normalcy" between Maggie, Lilly and Annabelle, where they are equal!  Where Maggie's brilliance shines through with her sisters!  I ask, why not every day?  What are we missing?  It is painstaking!  She has missed out on the academic cultivation that Eisenhower could have given her, going to the same school as her sisters, the incredible music program Dist 86 offers and the friendship of kids in the same area!  I feel there is so much more for her, like she is being held back when she should be excelling!  It exhausts me! As we search for a preschool that is a right fit for Murdoch, the same feelings hit.  I am so thankful that our other children don't have the same struggles that Maggie has, but I know I will feel the same as Murdoch begins hitting his milestones!  It will be a continuous vicious cycle.  As I sit in Eisenhower's Gym tomorrow, I will beam with pride and excitement for Lilly!  I will keep it about her, but I guarantee there will be tears of both joy, for Lilly, and sadness, for Maggie!


 

Thursday, April 5, 2012

A Day In The Life of...

...PDD-NOS, Sensory Processing Disorder, General Anxiety Disorder, ADHD & Impulse Control Disorder!


It isn't right!
The craziness,
The chaos!

Jumping...screaming
Crying...laughing
Bumping...rolling
Pounding...hitting
IT'S ALL WRONG!

Too tired....can't sleep,
Too loud...too quiet
Turn it up...turn it down
SHUT UP!  Please?

Too soft...too crunchy
It smells...it doesn't
Icky...yummy
I DON'T LIKE THAT!

It hurts...it tickles
Hug me....squeeze me
Carry me...put me down
LEAVE ME ALONE!

Too hot...too cold
Too itchy...too soft
Too short...too long
Too loose...to tight
IT DOESN'T FIT RIGHT!

SCHOOL'S STUPID!

I CAN'T DO IT!

IT'S DISGUSTING!

YOU'RE HURTING ME!

MY BRAIN HATES ME!

MAKE IT GO AWAY!

ARGH!

MOMMY?

I LOVE YOU!

In the midst of the chaos, there is greatness! It is just my wish that the greatness would rescind the chaos! ~ Sandra Becker

* Almost four years since I originally posted this and I can tell you there is hope and the greatness does eventually rescind the chaos...and it's BEAUTIFUL!!

 

 

Monday, February 20, 2012

Another Birthday



Maggie turned 9 today.  Yesterday we celebrated with her siblings and one of her Uncles, an Aunt and two of her cousins.  It was a good day for her.  She received a new bike from us and a doll from her cousins that she had been wanting.  However, for the past 2 months have been spent telling her she cannot have a slumber birthday party.  She has one friend she could invite and her cousin who is 4 yrs the younger.  When she was in first grade we were able to have a swimming party at the park districts indoor pool for her with all the girls from her class.  This was the year she spent in an inclusion classroom and had really grown as far as attending school went.  She had a very disciplined teacher and a special education teacher that had gone to a seminar to understand her primary diagnosis, Sensory Processing Disorder.  She was doing INCREDIBLE in this classroom. She had an absolutely wonderful time.  She was, well, a normal kid on this day.  She was a normal 7 year old.  The stimulation didn't bother her, her auditory was on track, her maturity and social skills were both completely age appropriate.  This day was nothing short of MIRACULOUS.  By the time she entered 2nd grade a lot had changed at her school and change is not a good thing for Maggie!  After a rough start, classroom changes and med changes we eventually had to remove her from her school to an out of district school.  She spends her days in a classroom with other children that have diagnosed behavior, emotional, neurological and mental impairments and disabilities.  These children are all there from various school districts surrounding the school, and they are ALL boys.  You can't exactly have a princess party with a group of boys or a slumber party for that matter.  It has proven heartbreaking for me to continually tell her no.  To try and reason with her.  To try and reassure her.  I honestly thought that having the day off of school for her birthday would be considered awesome to her.  Not so much!  It isn't that she wants to be at school, but it has been nothing but an emotional roller coaster ride today.  She was sure that she was having a party even though we had not invited anyone over and there were no invitations.  She was sure that even though I had said no several dozen times over the past 2 months that there was in fact going to be a slumber party.  She is in fact devastated by it all!  Another birthday of feeling like a complete failure as a parent!  Another day of not having a clue how to make it all better.  Just another birthday!